Hi Guys,
Anyone out there been diagnosed or suspect that they may have lupus?
Paul
A forum for and run by patients for anyone interested in Pituitary Conditions
Lupusees
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Lupusees
by Paul Clarke » 12 Aug 2009, 14:50
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On my gravestone, I want them to write - "I told you I was sick!"
The truth is out there! (Problem is the bloody tumour is in here!")
On my gravestone, I want them to write - "I told you I was sick!"
The truth is out there! (Problem is the bloody tumour is in here!")
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Paul Clarke - Posts: 1258
- Joined: 06 Apr 2009, 08:18
- Location: Mayo, Ireland
Re: Lupusees
by moge » 12 Aug 2009, 17:09
I am under evaluation for lupus right now. Without insurance I'm at the mercy of free clinic docs and they are strapped for time and money, so getting the tests for this competes hundreds of other patients who also need dx.
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moge - Posts: 128
- Joined: 24 Jun 2009, 04:38
- Location: Denver, Colorado USA
Re: Lupusees
by Paul Clarke » 12 Aug 2009, 18:05
Hi Moge,
I have recently become heaavily involved in the Irish Lupus Support Association. As part of my remit, there is an extensive informative web site in development along with a forum that will be run alomg similar lines to Pituitary Chat. This site is aimed at auto-immune disorderrs in general. In the last two years, there have been huge strides made in the treatment of lupus. While the medical profession is faar more aware of the condition now than it was even 5 years ago, the treatments that continue to be thrown at the condition are now considered to be counter productive.
I will update you as more info becomes available. There is currently aa site at www.lupus.ie which is of limited use.
Regards,
Paul
I have recently become heaavily involved in the Irish Lupus Support Association. As part of my remit, there is an extensive informative web site in development along with a forum that will be run alomg similar lines to Pituitary Chat. This site is aimed at auto-immune disorderrs in general. In the last two years, there have been huge strides made in the treatment of lupus. While the medical profession is faar more aware of the condition now than it was even 5 years ago, the treatments that continue to be thrown at the condition are now considered to be counter productive.
I will update you as more info becomes available. There is currently aa site at www.lupus.ie which is of limited use.
Regards,
Paul
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
On my gravestone, I want them to write - "I told you I was sick!"
The truth is out there! (Problem is the bloody tumour is in here!")
On my gravestone, I want them to write - "I told you I was sick!"
The truth is out there! (Problem is the bloody tumour is in here!")
-
Paul Clarke - Posts: 1258
- Joined: 06 Apr 2009, 08:18
- Location: Mayo, Ireland
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